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Will you sign our #Scrap6Months petition?

Please sign our new petition to the Government, calling on them to Scrap 6 Months and make benefits more accessible for people with MND and other terminal illnesses.

 

Over the last few months, many of you have taken action on our Scrap 6 Months campaign to help make benefits more accessible for people with MND and other terminal illnesses.

 

Now, we need you to help us put pressure on the Government by signing our petition!

 

To All People / Families who have had experience of using the Portsmouth Wheelchair Services

We have an opportunity to feedback to the NHS body that is responsible for wheelchair services in our area, Portsmouth & SE Hants.

 

They are seeking your views on your experience of the service, but, particularly – what could make this a better service for people living with MND and their families.

 

There is also detail of dates/times for four meetings that people can attend if you would like to have a meeting face:to:face to discuss.

 

This is all about planning future services, so a chance for us to shape them. Please share your views.

 

http://www.portsmouthccg.nhs.uk/Join-In/wheelchair-service-review.htm

 

MNDA Portsmouth Group Newsletters.

We are in the process of trying to cut down on the number of copies of the Newsletter we send out by post, as this is quite a drain on our funds. If you would be happy to read the newsletter here on our website, or would be happy to receive it by email, please let us know by writing to portsmouth@mndassociation.org

 

If we have not sent you a copy by post and you would really like to receive a paper copy – again, please let us know. Thank you!

 

The latest edition of our newsletter may be downloaded from the list on the right hand side of this page.

 

Petersfield Town Council signs MND Charter

 

Petersfield Town Council
Steve Isaac has MND, Petersfield Town Mayor, Cllr James Deane. council members, Elizabeth Moss with the Charter and other members of the MND Association, Lorraine, Claire and Louise plus Steve’s wife Debbie Isaac.

Following in the footsteps of Portsmouth and Southampton councils, Petersfield Town Council has agreed to adopt the Motor Neurone Disease (MND) Charter, in support of people living with this terminal disease and their carers.

 

A spokesperson for the MND Association said that they were very grateful to the council for their support and welcomed them to a growing number of organisations and councils who have signed the Charter.

 

The Town Council has given their support to the five points of the Charter. The right to:

  • an early diagnosis and information
  • access quality care and treatments
  • be treated as individuals and with dignity and respect
  • maximise their quality of life
  • carers of people with MND to be valued, respected, listened to and well-supported

Chris James, Director of External Affairs for the MND Association said:

 

“The importance of the MND Charter is undeniable. We want everyone to be clear that access to the right care, in the right place, at the right time. As set out in our Charter, can transform lives.”

 

The local support group of Portsmouth and South East Hampshire, some of whom were represented at the presentation, offer advice and access to help and equipment to people living with MND.