MND Portsmouth Group
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Meet our Volunteer Team

 

In alphabetical order:

 

Judi
Judi Ammari, Publicity Specialist

Judi also owns SprintPR, a local public relations consultancy. She populates our Facebook page, liaises with the media on fundraising and awareness stories and actively promotes the work of our Group and other community fundraisers. Judi says:

 

“My sister was diagnosed with MND in 2013 and sadly died in 2015. Originally, I wanted to become an AV but was advised that this may be too distressing as I was just beginning to understand the effects of the disease. I joined our Group in January 2014, establishing their Facebook page, writing media releases and supporting local events. I also helped expand and publicise our Quality of Life Grants for supporting people in our area. Our volunteers are amazing and the Group is very supportive.”

 

 

 

 

 

 

Kim Archer
Kim Archer, Group Leader, Voice Banking and Association Visitor Volunteer

"My interest in MND stemmed in part from my work as a CEO in the Phyllis Tuckwell in Farnham in the early 2000’s, where we developed services for plwMND with a particular interest in enabling voice capture to assist with communication should individuals lose their natural voice, as well as environmental controls to enable the greatest possible independence.

 

About 3 years ago, two friends had been diagnosed with MND. I started to research what was available now in ‘electronic speech’. This led to meeting Louise Rickenbach who had a vision to achieve what is now called voice banking for all plwMND who could benefit. A pilot project was established successfully in our area and the project has now developed to include many centres across the country.

 

Although my life is now filled with great days with John (husband) and our Mabel, (a flatcoated retriever), playing numerous instruments, dabbling in all types of art, gardening, and of course, time with friends, it is a privilege to support people living with MND and their family and friends. The little I can do I hope provides support, some comfort and understanding, guidance, and a positive zest for the life that remains."

Claire Cox
Claire Cox, Association Visitor

 

Claire explains:

 

"When I retired, I realised how much I missed working within a team, and I also missed the feeling of doing something that was helpful to others. I looked at lots of possible voluntary roles in the charity sector and chose the MND Association as the best fit for me. MND is one of the most challenging conditions for patients and their families to cope with, and it is vital to grasp any opportunity to ease their journey. I also discovered that the MND Association offers extensive training and peer support for its volunteers. I have been an MND Association Visitor for 18 months and it has been a privilege to have the opportunity to offer support and guidance to people living with MND and their carers”

 

 


 

 

Peter and Gill
Gill Crosse, Coffee Morning Volunteer

Peter and Gill are a dynamic husband and wife team and have been involved in the Group for many years. Together, they have helped organise our monthly coffee mornings at the Rowans Hospice since 2001. At these mornings, they hope that they are able to make life as normal as possible for both people with MND and their carers with their friendly chats, tips and information.

 

As Peter is a retired Financial Chartered Accountant, we are grateful that he is also our Group Treasurer. He keeps us up to date with local funds letting us know monthly how much we have to spend in helping local people and contributing to the national charity appeals. Peter says:

 

“Our Vicar introduced us to a gentleman and his wife who had MND in 1997 because he thought we might be able to help. We followed Anne through her difficult journey for four years up until the end. Many intimate and difficult times with surprisingly lots of humorous moments. We became very involved in her care and firm friends. We witnessed first hand the effect of this very cruel disease and on the family as a whole.”

Megan Hedges
Megan Hedges

"Hi everyone, my name is Megan Hedges. I am a 20 year old student currently studying a degree in sociology with psychology at the University of Portsmouth. I have just started volunteering for the PR role at MNDA and I am very excited to have joined such a great community. I have always had a love for volunteering, meeting new people, learning new things and with the hope of taking a placement next year in PR, the opportunity was too good to miss out on!

 

A little about me, I am from a small village in Surrey called Thames Ditton, where I enjoy hanging out with friends and family. Before deciding to attend university I took a gap year where I travelled for 3 months around Bali, Australia and South Africa. Whilst there I was lucky enough to volunteer with two amazing wildlife conservations and meet some incredible people along the way.

 

I am also a great lover of sport. I have swam from an early age for my school and my local team and have always had a love for netball, but unfortunately now only take part recreationally.

 

So, there’s a little a introduction, I look forward to starting my adventure with MNDA and hopefully meeting lots of you along the way."

Lorraine
Lorraine Jarvis, Association Visitor

Lorraine is a retired Dental Hygienist and she joined our Group in 2015 as one of our Association Visitors. This involves her directly helping people living with MND and their families in the local area. The support can be in their own home, at our monthly Group coffee mornings or via email or telephone. Lorraine says:

 

“My husband was diagnosed in June 2011 and passed away in November 2013. I felt that the knowledge I gained, whilst supporting my husband through this horrendous disease, could be used to help others.

 

“I had to wait two years before I could apply for training as an AV. I am glad I did as I believe this to be an invaluable role.”

 

 

 

 

 

 

 

Andrew
Andrew Lane, Group Leader

Past Group Leader/Advisor/Programme Support

 

“I like being able to give something back and using whatever skills and experience I have to help others. I also enjoy meeting and getting to know everyone whose lives are touched by MND in our area. I use humour a good deal, but am full of respect for people coming to terms with the disease.”

 

 

 

 

 

Gill Lane
Gill Lane, Group Correspondent

Past Group Correspondent / Programme Support

 

“Andrew joined the Group a few years ago and I became more and more interested as I learned about this horrible disease. Now I have more time, I am able to get more involved.”

 

 

 

 

 

 

 

Melanie
Melanie Nicholls, Newsletter Editor

Melanie lives in Aldershot and is also a full-time mum. As she is very busy she does most of her volunteering from her laptop at home. Melanie explains:

 

“I enjoy pulling together our quarterly newsletter, which involves badgering everyone for contributions, making it look nice and getting it to print. It adds variety in my life and I have met some lovely people through the MNDA. I also feel that I am contributing to a worthwhile cause and hope that I am making a difference, in my own small way.”

 

 

Arsida Preci
Arsida Preci, Association Volunteer

Here is a little about Arsida:

 

“I am from La Spezia, Italy. A year ago I decided to live permanently in the UK. Though it was a challenging year, since English is my fourth language, it has been a wonderful time.

 

I joined our MND Association as an AV in December 2018. I am convinced that my education in psychology and the skills I have gained over these years will help me to provide more useful and warm help to our clients.

 

Being new to this role I hope to have all your support in the future.”

 

 

 

Jane Stearne
Jane Stearne, Oversight / Strategy / Communications Adviser

 

“My Mum was diagnosed with MND in March 2017 and passed away in February 2018. From her first suspicions regarding her condition, I wanted to find out as much as I could and got involved with the Portsmouth MNDA branch through the monthly coffee morning. This helped my understanding of the disease and I was also able to assist my parents with advice or guidance about a range of things having spoken to patients, carers and professionals at the meeting.

 

With the support of fantastic Association Volunteers, I undertook voice banking for Mum which she found immensely helpful and following on from that I took opportunities to raise further awareness of the process.

 

I am a busy Mum to two young children, but anything I can do to contribute as a Volunteer allows me to help people who have MND in their lives, and I find it also brings me comfort in maintaining another link with my wonderful Mum.”

 

 

 

 

 

Ashley Tong
Ashley Tong, Fundraising Support

 

“My lovely wife Lisa died last year of MND. I was her main carer, and although difficult at times, I loved the occasions when I could make her a bit more comfortable, make her smile.

 

I’m now keen to contribute time and energy to helping others that face the challenges of living with MND. I’m looking forward to being a part of this Group that is making such a difference for those families across the Portsmouth & SE Hants areas.

 

I’m an active social media user and feel I can bring ideas and these skills to the Group to contribute to fundraising communications and events.”

 

 

 

 

 

 

Sally Wang
Sally Wang, Finance Officer

"My name is Sally Wang, I am a finance graduate with more than seven years experience in the finance area. I am keen to volunteer because my dad passed away from cancer last year and this experience made me realise that there are lots of people who suffer from health problems and need help. I find helping others rewarding and it make me happy. Also, voluntary work will expand my social life and give me opportunities to meet more people in the community.

I am excited about taking up the Finance Officer Volunteer role where I can utilise my knowledge, academic skills and experience to become an asset to the Portsmouth & SE Hants MNDA Group."