MND Portsmouth Group
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Meet our Volunteer Team

 

In alphabetical order:

 

Judi
Judi Ammari, Publicity Specialist

Judi also owns SprintPR, a local public relations consultancy. She populates our Facebook page, liaises with the media on fundraising and awareness stories and actively promotes the work of our Group and other community fundraisers. Judi says:

 

“My sister was diagnosed with MND in 2013 and sadly died in 2015. Originally, I wanted to become an AV but was advised that this may be too distressing as I was just beginning to understand the effects of the disease. I joined our Group in January 2014, establishing their Facebook page, writing media releases and supporting local events. I also helped expand and publicise our Quality of Life Grants for supporting people in our area. Our volunteers are amazing and the Group is very supportive.”

 

 

 

 

 

Claire Cox
Claire Cox, Association Visitor

 

Claire explains:

 

"When I retired, I realised how much I missed working within a team, and I also missed the feeling of doing something that was helpful to others. I looked at lots of possible voluntary roles in the charity sector and chose the MND Association as the best fit for me. MND is one of the most challenging conditions for patients and their families to cope with, and it is vital to grasp any opportunity to ease their journey. I also discovered that the MND Association offers extensive training and peer support for its volunteers. I have been an MND Association Visitor for 18 months and it has been a privilege to have the opportunity to offer support and guidance to people living with MND and their carers”

 

 


 

Peter and Gill
Gill Crosse, Coffee Morning Volunteer

Peter and Gill are a dynamic husband and wife team and have been involved in the Group for many years. Together, they have helped organise our monthly coffee mornings at the Rowans Hospice since 2001. At these mornings, they hope that they are able to make life as normal as possible for both people with MND and their carers with their friendly chats, tips and information.

 

As Peter is a retired Financial Chartered Accountant, we are grateful that he is also our Group Treasurer. He keeps us up to date with local funds letting us know monthly how much we have to spend in helping local people and contributing to the national charity appeals. Peter says:

 

“Our Vicar introduced us to a gentleman and his wife who had MND in 1997 because he thought we might be able to help. We followed Anne through her difficult journey for four years up until the end. Many intimate and difficult times with surprisingly lots of humorous moments. We became very involved in her care and firm friends. We witnessed first hand the effect of this very cruel disease and on the family as a whole.”

Lorraine
Lorraine Jarvis, Association Visitor

Lorraine is a retired Dental Hygienist and she joined our Group in 2015 as one of our Association Visitors. This involves her directly helping people living with MND and their families in the local area. The support can be in their own home, at our monthly Group coffee mornings or via email or telephone. Lorraine says:

 

“My husband was diagnosed in June 2011 and passed away in November 2013. I felt that the knowledge I gained, whilst supporting my husband through this horrendous disease, could be used to help others.

 

“I had to wait two years before I could apply for training as an AV. I am glad I did as I believe this to be an invaluable role.”

 

 

 

 

 

 

 

Andrew
Andrew Lane, Group Leader

Past Group Leader/Advisor/Programme Support

 

“I like being able to give something back and using whatever skills and experience I have to help others. I also enjoy meeting and getting to know everyone whose lives are touched by MND in our area. I use humour a good deal, but am full of respect for people coming to terms with the disease.”

 

 

 

 

 

Gill Lane
Gill Lane, Group Correspondent

Past Group Correspondent / Programme Support

 

“Andrew joined the Group a few years ago and I became more and more interested as I learned about this horrible disease. Now I have more time, I am able to get more involved.”

 

 

 

 

 

 

 

Melanie
Melanie Nicholls, Newsletter Editor

Melanie lives in Aldershot and is also a full-time mum. As she is very busy she does most of her volunteering from her laptop at home. Melanie explains:

 

“I enjoy pulling together our quarterly newsletter, which involves badgering everyone for contributions, making it look nice and getting it to print. It adds variety in my life and I have met some lovely people through the MNDA. I also feel that I am contributing to a worthwhile cause and hope that I am making a difference, in my own small way.”

 

 

Roger Parsons
Roger Parsons, Finance Officer

 

“My father died of MND 25 years ago and, after he went, I didn't really want to think about the illness any more.

 

However, when I met my partner, Judy, 3 ½ years ago she told me how important the MNDA had been during the illness of her late husband and I started attending the MNDA coffee mornings and realised how useful such a group could have been to my parents.

 

I had been treasurer for my operatic society until I left Cheshire, and then for Friends of Stokes Bay until I left Gosport so, when Peter Crosse wanted to retire, I offered to fill the role for the Group as I would like to do my bit to help the Group continue to thrive and develop. ”

 

 

 

 

 

 

Jane Stearne
Jane Stearne, Oversight / Strategy / Communications Adviser

 

“My Mum was diagnosed with MND in March 2017 and passed away in February 2018. From her first suspicions regarding her condition, I wanted to find out as much as I could and got involved with the Portsmouth MNDA branch through the monthly coffee morning. This helped my understanding of the disease and I was also able to assist my parents with advice or guidance about a range of things having spoken to patients, carers and professionals at the meeting.

 

With the support of fantastic Association Volunteers, I undertook voice banking for Mum which she found immensely helpful and following on from that I took opportunities to raise further awareness of the process.

 

I am a busy Mum to two young children, but anything I can do to contribute as a Volunteer allows me to help people who have MND in their lives, and I find it also brings me comfort in maintaining another link with my wonderful Mum.”